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EveryLife Foundation for Rare Diseases

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The EveryLife Foundation for Rare Diseases is a 501(c)(3) nonprofit dedicated to accelerating biotech innovation.

Industries

Biotechnology

Headquarters

Novato, United States

Employees

1-10

Links

Org chart

EK
Emil Kakkis
President

Emil Kakkis

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Jamie Sullivan
Vice President Of Policy
Annie Kennedy
Chief Of Policy, Advocacy, And Patient Engagement
TB
Ted Brasfield
Vice President Of Alliance Development
Brenda Colmenares Murzi
Director Of Communications
Alyssa Terwall
Senior Director Of Operations And Events
Megan Pinegar
Chief Operating Officer
Baillie McGowan
Associate Director Of Policy And Research
LA
Lina A.
Associate Director Of Finance And Salesforce
Merrill Friedman
Board Member
Michael Pearlmutter
Chief Executive Officer

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