Lori McKenna Gorski

Ms. Gorski is a well-established biotechnology executive with over 20 years of experience specializing in patient advocacy for rare disease communities, including supporting clinical trial and access strategies, patient engagement and disease awareness communications. In 2017, Ms. Gorski founded a consultancy business to advise biotechnology companies in the U.S. and Europe on patient advocacy and communications strategies, working to support innovation and access to therapies that can address unmet medical needs and transform lives. She also spent several years at Sanofi Genzyme where she led global communications for rare diseases, including lysosomal storage disorders, for their clinical development programs, patient advocacy programs and disease awareness initiatives. She later joined Sanofi Genzyme’s Global Patient Advocacy team where she initiated programs to support disease awareness, provide caregiver support and communicate clinical program updates. She began her career at the global public relations agency Brodeur Worldwide and eventually moved to an in-house role at Thermo Fisher Scientific, where she oversaw communications activities for 12 divisions worldwide, financial media relations, and executive communications. Additionally, she currently serves as a board member of Our Odyssey, an organization dedicated to connecting young adults impacted by a rare or chronic condition with social and emotional support in the hope of improving the quality of life.