We imagine a world without pulmonary fibrosis.

The Pulmonary Fibrosis Foundation is focused on our mission to act as the trusted resource for all who are affected by this disease. Our signature programs include:
PFF Care Center Network
PFF Patient Registry
PFF Patient Communication Center
PFF Ambassador Program
An international network of support groups and online communities
The PFF Summit
Comprehensive disease education materials

Our expert Medical Advisory Board and the biennial PFF Summit allow us to maintain an ongoing dialogue with physicians, researchers, industry representatives, and the patient community. This creates a collaborative environment that will help us achieve many of our goals.

Our peer-reviewed research program supports projects that improve understanding of pulmonary fibrosis and will lead to successful therapies. We have developed significant relationships with industry partners and upheld our position as the honest broker to inform those affected by pulmonary fibrosis of important scientific breakthroughs.

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Pulmonary Fibrosis Foundation

Dr. Franck Rahaghi

William Schmidt

The Volunteer and Advocacy Programs team at the Pulmonary Fibrosis Foundation is dedicated to mobilizing community support and enhancing awareness of pulmonary fibrosis. They coordinate volunteer initiatives, manage the PFF Ambassador Program, and engage with patients and caregivers to advocate for their needs. Through strategic partnerships and collaborative events like the PFF Summit, the team fosters a strong network that empowers individuals affected by the disease while promoting education and research advancements.

Volunteer and Advocacy Programs

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Leadership Team